GOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOAL!

Thank you to everyone who helped us reach-- and exceed-- our team goal of $1500 to support the Southern New England Walk for Williams. Team Sawyer has received $2088 in donations to date, and our Walk goal of raising $10,000 is 92% of the way there. If you would like to still support Team Sawyer and help us reach our greater Walk goal, you can donate at the link HERE. My co-coordinator, Jillian, and I are excited to see the registrations come in and we are looking forward to reconnecting with the families we know as well as meeting some new people in the Southern New England region.

Although the "free shirt" deadline has passed, if you decide you would like to still register online for the Walk, you can do so until May 13th. We will also take walk-up registrations the day of the Walk.

If you would still like that free WSA t-shirt, we can always use some extra hands to help us the day of the Walk. We are looking for older teens and adults who can help with set up, raffles, monitoring the bounce house and more. Let me or Jillian know if you can help!

On a personal note: Sawyer had his sedated CT scan this morning to find out what the situation is with his elevated blood pressure and some constriction in his renal arteries. We should have results in the next few days. Sawyer came through the procedure with no issues and is now enjoying some lazy time at home. Tomorrow is back to school!

Lastly, Gwen turns 6 this week. Here she is at her first Walk for Williams. We are so proud of the young lady she is growing into!

$37 Away!

We are only $37 away from our goal of raising $1500 for the Southern New England Walk for Williams and the Williams Syndrome Association. Thank you to all who have donated! If you still wish to donate, you can do so at the Team Sawyer Fundraising Page.

There is less than a week left to register for the Walk and to receive your free t-shirt. Click HERE to register today!

Even if you don't register to Walk, you are welcome to stop by Diamond Hill State Park on May 16th and enjoy our entertainment and participate in our raffles (you do need to be present to win or have a designated person there to pick up your prize). Our raffle prizes include an American Girl Doll, Alex and Ani bracelets, a Pandora bracelet, a Vineyard Vines necktie, a Kindle, Samsonite luggage, 2 family portrait packages, tickets to area entertainment such as Edaville, Davis Farmland, Southwick's Zoo, Launch, SkyZone and more. 

There are two other fundraisers happening in conjunction with the Walk. There is a Tastefully Simple fundraiser online until April 27th. All profits will support the Walk for Williams. Be sure to purchase through my party link HERE. It is a good way to stock your pantry while supporting the WSA.

The other fundraiser is May 8th, 4-8pm, at Launch Trampoline Park on RT 1 in Norwood. 25% of your admission will support the Walk for Williams when you bring in the flyer below. Let the kids burn off some energy and support the WSA at the same time-- I hope to see you there!

A Walk Update and Sawyer Skis!

The Southern New England Walk for Williams on May 16th is really coming together. Now, we wait for our "teams" to register and hope for sunny weather. If you wish to join Team Sawyer or another team, be sure to register by April 26th to get your free WSA T-shirt. Click HERE to register with Team Sawyer for the Cumberland, RI Walk.

We have had several sponsors step up to support the Walk including Pediatric Specialists of Foxboro and Wrentham, Pediatric Dental Center of Mansfield, Speech and Voice Therapy Center of Foxboro, and Normandy Farms. We are so grateful for support shown by those who care for our kids.

Raffles items are arriving including two fantastic portrait sessions from Sarah Montani Photography, an American Girl Doll, Alex and Ani jewelry and tickets to area attractions such as Edaville, Launch, SkyZone and Southwicks Zoo. You can keep up with all of the great stuff you can win by "liking" our Facebook page: Click HERE to go to it.

Team Sawyer is 13% of the way to our goal of raising $1500 to support the WSA. If you would like to donate through Team Sawyer you can go to our fundraising page by clicking HERE.

A few personal notes: We recently spent at day skiing at Mount Sunapee, home of the New England Handicapped Sports Association. I can't say enough good things about these volunteers who help people of all abilities enjoy outdoor activities such as skiing, kayaking and more. For the past few years Sawyer has utilized a "sit-ski", a kind of sled that someone else guides down the mountain. On our last visit, the volunteers felt that Sawyer was capable of trying actual skis. I was a little doubtful, but Sawyer exceeded our expectations and spent the morning session skiing on the learning hill with two wonderful volunteers. Here is a little video showing one of Sawyer's early "runs" on skis:

In other news, Sawyer is scheduled for a sedated CT angiography at the end of April. Anesthesia has risks for people with WS and we are so fortunate to live near a world-class facility like Mass General Hospital that takes the risks seriously. Sawyer has been having some high blood pressure issues and has a bruit (a murmur in his abdominal arteries) that indicates some kind of constriction going to his kidneys. We will be glad to have some answers at the end of April and hope that we can avoid a surgical intervention. Your prayers for a positive outcome are appreciated.