Thursday, May 7, 2015

Launch Fundraiser Tomorrow!

Our fundraiser at Launch Trampoline  Park in Norwood is tomorrow, Friday May 8th, 4-8pm. I will be there with information on WS and the Walk for Williams. Bring your friends and have some fun while supporting the Williams Syndrome Association! You can print the flyer below or just mention the fundraiser at the admission desk.



Thank you to everyone who has supported the Walk for Williams so far! Team Sawyer has raised about $2363 so far (not counting some checks I recently received in the mail) and the Walk as a whole has raised $11,618 to support the many programs of the Williams Syndrome Association. Hooray!

We have lots of great raffle items for the Walk, and anyone is welcome to come by Diamond Hill State Park and purchase tickets for a chance to win. Here are just a few of the great prizes-- I'll post a full list next week as we finalize all of the details.


You can still register to walk as a team online until Wednesday the 13th. After that, you will have to register on-site the day of the Walk. Click HERE if you want to register now.

Finally, Sawyer's sedated CT last week showed that he has some stenosis of his right renal artery, however, it is not severe enough to require any kind of intervention. It is difficult to get a good blood pressure reading on Sawyer, and coupled with his anxiety it is hard to tell what is a legitimate reading, white coat hypertension or someone who just can't take a good blood pressure. On average, his BP is not high enough to warrant medication, so we are continuing to monitor everything for the time being. So, hooray for that!




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